YOUR SOURCE FOR INFORMATION AROUND
THE HTC AND BEYOND
Why Comprehensive Care?
Members of the care team at HTCs include:
Hematologists - specialists in blood disorders.
Pediatricians - specialists in caring for infants, young children and teenagers.
Nurses - medical specialists in hemophilia care. The nurse is probably the person you will see most frequently.
Social Workers - specialists who assist you with the issues of daily living, such as adjusting to hemophilia and locating resources (e.g., insurance, transportation, housing).
Physical Therapists - specialists in activity, exercise and rehabilitation.
Orthopedists - specialists in disorders of the bones and joints.
Dentists and Oral Surgeons - specialists in disorders of the teeth and gums. The dentists and oral surgeons at HTCs are experts in treating children and adults with oral bleeding problems.
Patients and Their Families - You are also an important member of the treatment team. The staff needs your input to develop a plan of care that will ensure that you remain healthy, active, and able to live successfully with the added challenge of hemophilia.- See more at: https://www.hemophilia.org/Researchers-Healthcare-Providers/Comprehensive-Medical-Care-Hemophilia-Treatment-Centers
The benefits of comprehensive care
A yearly comprehensive evaluation for persons with a blood disorder is highly recommended. This multidisciplinary evaluation has been well documented by national statistics to have an excellent cost-benefit ratio. Private insurance, Medicaid and Medicare usually cover the cost of the comprehensive visit.
The comprehensive evaluation
The comprehensive evaluation is made by a multidisciplinary team and takes approximately two hours per patient. Team members may include a pediatric hematologist or adult hematologist, hemophilia nurse specialists, orthopedist, physical therapist and social worker/psychotherapist.
During the evaluation, problems and concerns are identified and assessed. The findings and management plans are then reported to the patient and referring physicians.
The comprehensive evaluation includes a physical examination, laboratory studies, and assessment of bleeding / thrombotic episodes and their associated pathological conditions.
Comprehensive clinic evaluations may also address psychosocial and financial burdens that these disorders can place on affected individuals and their families.
The concept of comprehensive care is to treat the whole person and the family through continuous supervision of all the medical and psychosocial aspects of bleeding disorders.